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Deleted User Posted 9 months ago
Chronic back pain

Is any here that has or suffer from Chronic back pains.

How do you cope with this and what treatment are you having

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2 likes & 85 replies
    • SelsdonLion 22nd April 2021 at 9:57 pm

      Hi Alive,

      I used to suffer from sciatica resulting from a lower back problem. I’ve had pain on and off for over 20 years. I’ve tried chiro and physio. I was never sure whether it was these treatments that helped or just the time off work and resting my back.

      I then read an article about research into which treatments worked best for most people and the one that topped the list was Yoga!

      I took early retirement 6 years ago and for the first time, I was able to put my health ahead of earning a living. I couldn’t find a local yoga class but I was able to find a Pilates class, so I decided to give that a go. I’ve found that it has strengthened the muscles around my back and I hardly ever have back problems now and if I do they are milder and I recover faster. I’ve also lost some weight which has helped too.

      Reply
      • Deleted User 23rd April 2021 at 6:24 am

        Hi SelsdonLion

        Thank you for your message I used to go to my local gym at leat 4 times a week doing a mixture of activity’s most swimming. I also do Pilates. Since lockdown and gym not opening back pains got worse have now been slowly getting back to gym and have lots quite a bit of weight.
        The treatment that I had in January is a kind of acid drip that is repeated once every 3 to 6 months depending on the level of pain it’s just slow down the process of bone deformities .

        Reply
    • Catwoman 23rd April 2021 at 11:14 am

      I have chronic back pain have been given all sorts of medication including Tramadol but nothing works. Surgeons say operating would be a nightmare. I just get on as best I can if things are really bad I rest but I’m not really sure that’s the best option 😒

      Reply
    • tang.sue0104 26th April 2021 at 12:48 pm

      I have a crushed vertebra in my lower spine, probably caused doing gym while still at school. I have relied on chiropractors for manipulation when I bend awkwardly or similar causing pain. I did see an orthopaedic specialist who did an xray and advised me to exercise to keep myself flexible but to avoid having any operation as they could not guarantee complete resolution. I find this works for me – I am 69 now.

      Reply
    • Diana and Penny 26th April 2021 at 10:24 pm

      my physio gave me exercises and recommended I take up Tai Chi. I have just watched the info about Tai Chi on the Restless health page, worth a look and it tells you how to start it. i have just been watching videos on u tube – free of charge. hope to join a real face to face class one day soon

      Reply
    • Deleted User 5th May 2021 at 2:45 pm

      I have severe back pain due to a number of conditions. Sadly once one thing goes, it puts strain on the other parts and they all get affected. I have degenerative disc disease, facet joint arthritis, spinal stenosis, pars fractures, and spondylolisthesis – the worst by far is the stenosis which causes an immense amount of unbearable pain, and because it causes the spinal cord to become compressed, it causes severe pain in the legs too. On top of that, I have osteoarthritis in my knees and my hip, and they think the stenosis is now affecting my neck so I am having a full spine MRI in a couple of weeks to see how far it has progressed. Some days I have to use a walking stick, other days crutches, and on days out I have to use a wheelchair as I can’t stand for more than about 10 minutes without the pain kicking in again. I take Gabapentin which makes me stupid – I work from home and by 12 o clock I am falling asleep at my desk, and have become very forgetful because it causes brain fog. I am also on co-codamol which I try not to take too often, but lately, I have been popping them like smarties! I’m only 52 and it sucks, but I try and deal with it with humour. My walking sticks are all customized and blingy, and my wheelchair is pink. I’ve no idea why I developed the problems, just part of life’s lottery I guess, but it’s not going to go away so I have to live with it.

      Reply
      • Deleted User 5th May 2021 at 2:47 pm

        Plus, I get to wear high heels again when I’m in my chair, and the bottoms NEVER get scuffed, haha!

        Reply
        • Strot62 5th May 2021 at 6:56 pm

          You’re an inspiration Leesh. In spite of all your physical ailments daily challenges, you remain upbeat. I have no right to complain over my physical challenges. I pray you get the help, support ie medical to get to a place of pain free lifestyle.

          Reply
        • Deleted User 6th May 2021 at 8:40 am

          Of course you have a right! Pain is pain, and you should never compare yours to someone else’s! As for me, I find that humour does help with the pain – when I am down (And I do get down occasionally) the pain is worse, so being happy helps. I am a firm believer in positive thinking and the Law of Attraction, and as ‘far out’ as it sounds, I try to concentrate on what I do have rather than what I don’t. While these conditions are painful and have turned my life upside down (I was dancing 3 times a week until 2 years ago), they won’t kill me. And when we go out for a family day out, the kids don’t have to carry their bags and coats…they can hang them on the back of the wheelchair hahahahahaha.

          Reply
    • Deleted User 5th May 2021 at 3:44 pm

      Hi Leesh
      Thank you for sharing. I am so sorry to hear about your health. I know it must be very hard for you to comprehend with life challenges that you have to face when dealing with so much I hope when you have your MRI Scan done that it will show the results that you are hoping for as you’ve already explained it’s something that will not go away and you now have to learn to live with this.

      I too have been told that not much couldn’t be done about my spine. And will be having my second treatment by the end of May so hopefully things will look a little bit better for me

      Reply
      • Deleted User 6th May 2021 at 8:47 am

        Thanks Alive. It’s been a long slow journey for me – my problems began when I was around 19 – my GP said ‘at least you know when to bring an umbrella out’ as my knee always hurt in bad weather. The spine issues started a few years after that, so it’s been a part of my life for many years. The deterioration over the past couple of years has been rapid, though. I used to be able to dance at least 3 times a week up until 2 years ago, even with the pain as codeine would allow me to bear it long enough to get through the evening, but sadly that is no longer the case. Did I read somewhere that you have Pagets? I believe that can cause similar symptoms, so I totally empathise with you. I’ve never heard of an acid drip, though, that sounds daunting. Does it affect you? I’m sorry you are suffering, too. Chromic pain can be so hard to bear sometimes. x

        Reply
        • Deleted User 6th May 2021 at 4:06 pm

          Hello Leesh
          Sorry not got back to you been away. I’m sorry you’ve had so many problems with your health from such a young age.
          I was diagnosed over a year ago always had back problems just didn’t realise why until it was discovered in the an X-ray. Then when the consultant told me what was going on and showed me the x-rays it all kind of made sense they explained to me that there is no cure and only pain management and my first course of treatment I had earlier this year which was Zolendronate drip. It slows down the process and then have to take painkillers to maintain pain hopefully I will be having a second treatment by the end of this month.
          I wish you all the best and hope that you will be able to manage your life as best as possible as I understand it can be very hard

          Reply
        • Deleted User 7th May 2021 at 8:43 am

          Thank you Alive 🙂 Like you, there is no cure for mine, only management; even surgery on the spine is only done to prevent deterioration and to stabilise the spine, not to cure it, and there is a high chance it would make the pain worse. Despite this, I am actually pretty content with life. It’s forced me to slow down which is lovely in many ways, and I cherish the good things in my life – my children, my grandchildren, my dog, nature, good food. And of course, I have been blessed with a great sense of humour which gets me through the worst times and also makes it easier for my family to deal with what they see me going through. I love life, and will constantly adapt to find ways to make it work as my condition changes.

          Reply
    • Deleted User 5th May 2021 at 10:34 pm

      I suffer terribly with back pain leg pain head pain face pain hand pain foot pain knee pain pain pain and then some mornings I wake up and I’m fine.
      I know it won’t last though.
      My good days are becoming less and less.

      Reply
    • Deleted User 5th May 2021 at 10:52 pm

      You might see me in Tesco walking around with a stick sometimes two.

      Later that day you might see me in my electric wheelchair and give me a funny look “I’m sure I saw him walking around earlier today”.

      Happens often and the looks no longer bother me.

      If you saw me the last week you’d know there was something wrong with me and you might even see the pain and the tiredness in my eyes.

      The week before you wouldn’t have known there was anything at all wrong with me.

      My main problem is I have tumours lots of them in my spinal cord and your spinal cord controls just about everything from your neck downwards.

      Sometimes it’s not pain that’s troubling me but a total lack of feeling at these times driving is a little difficult.

      The tumours are probably not going to kill me as they are benign Schwannomas.

      I have half a dozen in my head on my trigeminal nerves.
      Untold number on spinal cord.
      No one can do anything about them apart from prescribe.

      I get Diazepam now and again as and when I feel I need them but I generally avoid them as much as possible.

      I tale Gabapentin and Tegretol no not for epilepsy but facial pain.

      Paracetamol too.

      My main pain killer is Palexia (Tapentadol) a synthetic opiate.

      You probably never heard of it so….

      Tapentadol prolonged release (Palexia® SR)

      All Wales Medicines Strategy Group (AWMSG)

      Record ID 32012000349

      English

      Authors’ recomendations: Tapentadol prolonged release (Palexia® SR) is recommended as an option for restricted use within NHS Wales, only in the following subpopulation within its licensed indication: Patients with severe chronic pain, in whom morphine sulphate modified release has failed to provide adequate pain control or is not tolerated. Tapentadol prolonged release (Palexia® SR) is not recommended for the management of severe chronic pain in adults, which can be adequately managed only with opioid analgesics, outside of the subpopulation described above. AWMSG is of the opinion that Tapentadol prolonged release (Palexia® SR) should be initially prescribed by a specialist*. Prescribing may be continued in primary care with appropriate communication and specialist input. *Specialist implies specialist team or GP with special interest (GPwSI) with appropriate accreditation from the specialist faculty. https://database.inahta.org/article/12409

      Despite everything I’m a very cheerful positive kind of person.

      Like I say many times you could meet me and not have a clue there’s anything wrong with me.

      Reply
      • Deleted User 6th May 2021 at 8:51 am

        That sound so painful 🙁

        As for being a part time wheelchair user, I totally get that. If I go shopping, for instance, and need something from the top shelf, I will stand up to get it, and there is always some idiot staring or shouting ‘It’s a miracle!’. The thing is, I use a chair to stop the pain of walking – I *could* walk around Tesco and then be laid up for 3 days, or I can use my chair and be ok the next day.

        As for the people who stare, just look them in the eye and whisper ‘You…you can see me?’ 🙂

        Reply
        • Deleted User 6th May 2021 at 9:31 am

          So many people do not understand the difference between wheelchair user and wheelchair bound.

          Reply
        • Deleted User 6th May 2021 at 9:45 am

          Exactly. I’m not going to put myself through days of intense pain just to make other people feel better – it took me a long time to accept that I need help, but now that I have I’m going to use it. Same as my blue badge…if I park in a disabled bay outside a shop that I know I’m only going to be in for 5 minutes, it would take longer to get the chair out of the car than it would to shop, so I suffer the pain and walk. The looks I get from people because I get out of my car and use my legs! I also have balance issues because the nerve damage in my back disrupts the signals to my legs, and I can stumble sometimes, so me parking at the other side of a car park isn’t safe for anyone!

          Reply
    • Deleted User 5th May 2021 at 10:57 pm

      I mentioned driving.

      I have to take a driving assessment every three years because of the medication and because of severe pain and loss of feeling.

      Took my second one recently and passed again with 100% marks.

      If I don’t take it I lose my license and would hate for that to happen.

      Reply
    • Rosiesq 5th May 2021 at 11:15 pm

      I was eventually, after a few years being sent here and there, diagnosed with severe arthritis in my lower back. I have learned over the years the best way to manage it, which unfortunately includes medication, although I try to keep it to a minimum as best I can.
      I guess you need to find out what is causing your pain first, and go from there.

      Reply
      • Deleted User 6th May 2021 at 4:21 pm

        Hello Jakb
        Sorry if I have not got back to you I have been away.
        I’ve read your post thank you for sharing. This has left me feeling a little sad, as I can in imagine what life must be like for you. I know how much you enjoy living and there is so much you want to do and you still do which I am extremely proud of, your courage to carry on as much as possible.
        yes I understand there are days when this is difficult and you have to use your wheelchair or mobility and people around you just don’t understand, why to have days like this where the pain is unbearable and cannot manage to get out of bed.
        I was diagnosed over a year ago with my back problems not realising that it’s a problem that has been happening to me over many years there is no physical signs of this and there is no cure to what I have been told, the treatment that I’m having is Zolendronate drip it slows the process down and then pain management, with painkillers I had this treatment early January of this year which did help, but due to lockdown and sitting around at home most of time has brought the pain back more. I am waiting now for second treatment which I’m hoping to have by the end of May.
        Do you have any counselling I do and I feel this has helped me a lot.
        I wish you all the best if you feel you need to talk you know I’m hear 👍🏼

        Reply
        • Deleted User 7th May 2021 at 1:08 am

          Dearest Alive thankyou for your warmth and concern but I’m fine… considering.
          At this stage in my life I don’t need counselling as I have a wonderful family of kids and grandkids that keep me smiling and on the ball.
          Despite all my problems… I have more than I’ve mentioned so far… I have a good life lots of love and laughter and still having adventures out.
          My music hobby keeps me busy too.

          Reply
        • Deleted User 7th May 2021 at 7:11 am

          I’m just a caring person so happy that you have your family and friends to support you
          And the love of music take care ✌🏾

          Reply
        • Deleted User 7th May 2021 at 4:10 pm

          I just thought of you while I was out.
          Why?
          The arrive alive van nearly got me!
          Sneaky or what?

          Reply
        • Deleted User 7th May 2021 at 4:14 pm

          Nooooooo. I hope you’re alright that must have been scary.

          Reply
        • Deleted User 7th May 2021 at 4:25 pm

          As locals we all know this regular use now of the railway station carpark but it drops from 70 to 50 and still catches us out but I remembered just in time. This road is a busy tourist route to seaside towns and Snowdonia. This is the main road from Ireland and the main road to Ireland from Europe Asia China so they are making a killing with that one van.
          A couple of miles further on they have installed average speed cameras which according to local news paper has been pulling in seventy grand a week!

          Reply
        • Deleted User 7th May 2021 at 4:30 pm

          That’s just sickening what they do with the money and can’t make it safer on both sides.

          Reply
        • Deleted User 7th May 2021 at 9:40 pm

          The railway station van clocks cars going in both directions on four lanes and there has never been an accident there.
          The public are pushing the police chief about cameras supposedly being about safety when these are so obviously about revenue anyway I’m sorry folks didn’t mean to hijack the thread.
          My backs killing me!!!!

          Reply
    • Cardy 6th May 2021 at 5:05 pm

      Yoga and work on your back muscles to help support yourself.
      Take advice first

      Reply
      • Deleted User 6th May 2021 at 5:30 pm

        Thank you Cardy I do have Yoga, And Pilates I also go swimming now the gym is ready to open again my pain has got worse over lockdown.

        Reply
        • Cardy 6th May 2021 at 8:51 pm

          Tell a yoga instructor your problem, and they can adapt exercise to suit you. And most importantly ensure you do it correctly.

          Reply
    • Eve Forbes 6th May 2021 at 8:22 pm

      Just a few ideas. Acupuncture removed my stiffness and lower back pain on the three time when I hurt myself. Four years of yoga have made me flexible and soothed my back. My preventative measures are-get in and out of bed sideways, never bend in the shower (lift your feet to dry toes etc), always sit upright with a cushion for back support, kneel when gardening. It’s easy to forget these measures. Good luck. 👍

      Reply
    • LauraJ 6th May 2021 at 9:46 pm

      Back Pain affects so many of us for numerous reasons, myself included. Something that often does the trick for me when I have a flare up for one reason or another is using a TENS machine which can be bought form many shops such as Argos and is inexpensive. It may take some getting used to but the idea is that you stick some pads around the area affected and it sends electrical impulses which you can control according to your own tolerance. It’s feels like a tingling sensation and you can increase it as you wish. It then stimulates your own natural endorphins which once produced help to reduce the pain. For me it’s really effective as you can watch TV as it works it’s magic. I went to a chiropractor once as I was having a lot of pain and he used it before he did his manipulations and that when I thought it would really help to have my own! Some women may be aware that It has been used as pain relief in early labour and is perfectly safe. So maybe it may be worth giving it a go! Good luck!

      Reply
      • Deleted User 6th May 2021 at 10:51 pm

        I can’t use a tens machine as it feels like I’m in one of Saddam Hussein’s police stations having been wired up to the mains.
        I discovered why when I went to the Walton centre for electrical potential tests.
        They had to abandon the tests because I was bouncing about unable to tolerate it.
        To do with the tumours interfering with nerve signals.

        Reply
        • Deleted User 7th May 2021 at 3:28 am

          This is what I really miss.
          I live in absolute paradise for walking sailing mountain climbing forests ancient woodland clifftops and beautiful beaches.
          This is taken from the island of Anglesey looking at the May snow 2021 on the mainland.
          I can’t go out walking anymore.
          I can go for beautiful drives though and accept that’ll have to do.
          Click to enlarge if you’re old fashioned like me and have a computer.
          I don’t know about tablets and phones with their small screens.

          Reply
        • Deleted User 7th May 2021 at 7:12 am

          Fabulous picture

          Reply
        • Deleted User 7th May 2021 at 8:35 am

          I used to take my dog out for long hikes through forests every weekend, and now I can barely make it to the park which is opposite my house. It does get me down if I think about it for too long, which is why I try not to – thinking never did anyone any good!

          Reply
        • LauraJ 7th May 2021 at 10:36 am

          It’s definitely not for everyone but for some like me it really helps! So wanted to share! 😉

          Reply
    • Deleted User 6th May 2021 at 10:54 pm

      No my spine doesn’t like the Tens machine it makes my pain even worse.

      Reply
      • Deleted User 7th May 2021 at 8:33 am

        Me too. Because I have so much nerve damage, the slightest stimulation to my skin causes it to feel like severe sunburn, so a TENS is out of the question. I can’t even stand waistbands or labels in clothes.

        Reply
    • Dory1964 7th May 2021 at 7:03 am

      Omg I’ve been off work for 9 weeks,having max pain relief,very hard to control the pain at times,excruciating

      Reply
      • Deleted User 7th May 2021 at 7:15 am

        Good morning Dory
        Sorry to hear about this yes when you feel this kind of pain it can be very tiring take survive all your energy and makes you feel very miserable I hope you’re getting some help for this

        Reply
    • Keith D 7th May 2021 at 2:53 pm

      i live with constant back pain as a result of an industrial accident over 30 years ago. it was originally diagnosed as prolapsed discs. i had surgery and it helped ease some of the pain but not all.
      i have been going to the gym and doing yoga, even on line via zoom
      i recently saw a physiotherapist, who has told me , that yes i have disc problems, but its not them that are the main cause of my leg and lower back pain. she has read an MRI scan report, take about 5 years ago , but says from her experience, when i had my accident at work in 1983, i actually suffered pelvic shock and this has resulted in my left hip moving partly from my pelvis.

      i am at present continuing to enjoy exercising, including using my mini-treadmill and online yoga, but the physiotherapist has told me that we need to manipulate my hip back into my pelvis through physiotherapy and exercise
      and build up my leg and buttocks muscles including yoga etc

      i am hoeful that in the next few weeks, my mobility will improve and i will be more pain free

      Reply
    • Keith D 7th May 2021 at 4:02 pm

      Thank you. My next physio session is,on 20th may.
      I love to exercise and do yoga,but thisis stopping me to some extent .
      Have a good week end

      Reply
    • Sheilacr 8th May 2021 at 3:36 pm

      It seems a lot us is suffering with back problems in so many different ways. I also suffer with low back pain and combine with osteoarthritis. I have limitations on everything I have to do. Shopping no longer than 2 hours, walking and sitting is the same. Sitting for to long periods my hip joints get stiff is like I have to oil the nuts before cranking them up. My best solution is taking breaks in between all my tasks which helps a lot. I prefer doing this rather than taking medication.

      Reply
    • Hillary 11th May 2021 at 5:19 pm

      Hi

      Have you thought about having hypnotherapy. It’s great for chronic pain management.

      I am an international Hypnotherapist, NLP Practitioner and Transformational Life Coach. I work over Zoom, so it doesn’t matter where you live. Yes – you can hypnotise someone over zoom – the wonders of modern technology!

      If you think you would like to give it a go, please let me know.

      Hillary

      http://www.liberationtherapiesandcoaching.co.uk
      http://www.facebook.com/groups/pausethemenopause

      Reply
    • karsteele 30th May 2021 at 2:44 pm

      I have extreme back pain most days – it’s either pain killers or a trip to the chiropractor, knowing I will need two or three visits, and it gets expensive.

      Reply
    • BicesterDave 30th May 2021 at 10:17 pm

      Yes I have suffered for over two years now

      Reply
    • BicesterDave 31st May 2021 at 8:31 am

      I have had physio which I couldn’t manage. Now it’s a combination of a very high dose of various medications and gritting my teeth unfortunately

      Reply
    • Welshtherapist 27th June 2021 at 1:06 pm

      I used to have regular low and upper back pain. Tai chi helped me and also opened my mind to what other treatments might be out there.
      I then trained as a practitioner in gentle hands-on treatments and now I mainly use and receive the EMMETT Technique, which I also am trained to use on dogs.
      It is a technique I now teach and so it has taken over my life.
      If you need to know more do direct message me.

      Reply
    • Bigstu 28th June 2021 at 9:43 am

      Have suffered with lower back pain for 10 plus years. Two back ops and numerous injections and had my nerves burnt off. Best thing is stretching and pilates combined with plenty of exercise and getting a bit of weight off has helped. Not going to improve so I just keep plodding on. I take pregabalin morning and night and co__drydamol as required. Baclofen helps too

      Reply
    • Matobo 28th June 2021 at 10:40 am

      I have some problems with degeneration of a few of my lower discs, it causes me quite a bit of pain from time to time. I have found several things which help.

      1. Light stretching exercises most days, there are quite a few Yoga poses which help and they can be simplified, for example, Downward Facing Dog with your hands on the back of a chair. I teach a style of Tai Chi, I find this can help as well.

      2. Managing one’s weight, I gained a significant amount of weight and have been shedding of late, simply by following a low-carb approach, it has helped significantly.

      3. Strengthening the core muscles of the body.

      4. Regular walking or cycling. Jogging can make it worse, but interval training, 1 minute gentle jog and 1 minute walk for about 30 minutes seems to be ok.

      Reply
    • karsteele 29th June 2021 at 3:23 pm

      There is only one answer to backpain a chiropractor. Been using one for years, not none stop of course. Don’t know where you live but search Google to see if there is a Halsa chiropractor Clinic anywhere near you. Fully recommend them.

      Reply
    • Deleted User 5th July 2021 at 2:52 pm

      Call me oldfashioned but I find sleeping on the floor works for my back. However I have to sleep alone.

      Reply
    • bantulraimos 16th November 2021 at 3:25 pm

      Hey! If you have severe lower back pain, it is advisable to be checked by medical personnel before beginning massage therapy. Massage therapy will produce the best results when combined with medical treatments such as physical therapy, chiropractic, or physician care. Many massage therapy professionals will work as part of an interdisciplinary health care team in overall patient evaluation and treatment. If you decide to go for massage therapy, I advise you to use this https://queenstantricmassage.co.uk/erotic-massage-london/ site with one of the best massage London services.

      Reply
    • Pennypitstop 17th November 2021 at 10:21 am

      OOOh poor you and all you others who have posted, I occasionally get a bad back and people who have never suffered it cannot know how awful it is. I use a back support belt which you can get from Boots and it helps me. I now try to keep active and do things to strengthen my back muscles as I think that is key thing for me.

      Reply
    • karsteele 17th November 2021 at 11:36 am

      The only answer I have ever had is go to a chiropractor. If it’s bad it can’t be fixd the first time, but after a few visits it should be OK. I’ve been going to chiros for as long as I can remember. I don’t know where you live but it a Halsa clinic is near you, they are good.

      Reply
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